Last night we ended up being in the ER for nearly three hours just to have her g-tube replaced (wish we had received our spare tube by then! We could … Continue reading Pittsburgh, Round Two continued…
Category: Krabbe
Pittsburgh, Round Two #ToriTuesday
What a day! We took the train to Pittsburgh this afternoon for Tori’s three month follow-up appointment with Dr. Escolar tomorrow. The train ride went smoothly except for one thing: … Continue reading Pittsburgh, Round Two #ToriTuesday
“…where everybody knows your name…”
When I go to the dentist I do not expect them to remember my name or who I am – after all, I am only there twice a year for … Continue reading “…where everybody knows your name…”
#ToriTuesday Update
It has been an exciting day for Tori! Haha. She had her opthalmology follow-up this morning in Hershey and then the E.I. nutritionist came to weigh and measure her. First, … Continue reading #ToriTuesday Update
What Will (Likely) Never Be…
Most days, Brennan and I do well with our reality regarding Tori. I’m not a very emotional woman normally, so it has been fairly easy in the past couple of … Continue reading What Will (Likely) Never Be…
Dreams of Healing, Part Two
We are fascinated by the dreams people continue to have of Tori being healed. You can see the first post about dreams here. While we cannot be certain that these … Continue reading Dreams of Healing, Part Two
#ToriTuesday Update
I am going to try to post an update on Tori each Tuesday from now on. #ToriTuesday 😄 Overall, Tori is doing really well. We decided to try using doTERRA … Continue reading #ToriTuesday Update
Maintaining Normalcy…
Now that we are nearly three months post-diagnosis, we are attempting to resume a “normal life” – living just like we would if she were healthy. We want to still … Continue reading Maintaining Normalcy…
Tori Update
For those who are not on Facebook, I apologize for not updating the blog lately with Tori’s progress. Here is an update with pictures! As of yesterday, Tori is 13.5 … Continue reading Tori Update
Plans Far Greater…
This appeared on my Time Hop today… It hit me in a new way this morning as I realized that it might possibly pertain to our own lives now. … Continue reading Plans Far Greater…
Even So, Joy 