I’ve been struggling lately with a strong desire/compulsion to finish things, to have resolution, to have less on my plate. I need to be able to breathe. I need margin. … Continue reading Learning to Live in the Dissonance
Press Release for SB 983
Senator DiSanto’s office issued a press release today about SB 983 – our Senate companion bill to HB 730. We are thankful that he was willing to help us improve … Continue reading Press Release for SB 983
Explaining the Current Newborn Screening System in Pennsylvania
Below is the text of a document I created and have been distributing to legislators to explain (as simply as possible) the way that Newborn Screening works in Pennsylvania currently … Continue reading Explaining the Current Newborn Screening System in Pennsylvania
Unexpected Loss – Kailee Seal
Ever since Tori went to Heaven I have held the belief that, if you are going to lose a child, we had it the “better” way because we had time … Continue reading Unexpected Loss – Kailee Seal
Travel With Toddlers
I knew that this trip to California would be the most challenging yet with our 20-month old twin toddlers, so I scoured the Internet for ideas of how to entertain … Continue reading Travel With Toddlers
Nineteen Months & Twenty-Eight Days
Sometimes I just don’t know what to say. I’ve had nearly twenty months to prepare and yet I’m still not sure what to write. I’ve felt some self-imposed pressure to … Continue reading Nineteen Months & Twenty-Eight Days
From Feelings of Defeat to Knowledge and Hope
I began the day feeling somewhat defeated, feeling as though there is nothing more I can do to help HB730 get to the floor. I had a phone call with … Continue reading From Feelings of Defeat to Knowledge and Hope
Hershey Bears’ Teddy Bear Toss Game 2019
As we wrote last week (see post here), we’ve been collecting giraffes since this summer in celebration of Tori turning five in Heaven. As of tonight we had 566 giraffes … Continue reading Hershey Bears’ Teddy Bear Toss Game 2019
Endless Hope & Relentless Joy
As I added favorite Christmas songs onto our Amazon Prime Music playlist, I decided to add some that I hadn’t yet heard. I typically stick with songs I love (and … Continue reading Endless Hope & Relentless Joy
Isaiah & Caleb’s Adventure List: Christmas Tree
One of my favorite traditions as a child was cutting down our own Christmas tree. I have such great memories of getting our permit for a tree in the mountains … Continue reading Isaiah & Caleb’s Adventure List: Christmas Tree
Even So, Joy 