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Even So, Joy

Weaving a Brighter Blueprint for Advocacy, Legacy, and Life.

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The Brackbills

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Leukodystrophy Awareness Month – Day Nineteen

Image · September 19, 2015September 1, 2015 · Leave a comment ·

Leukodystrophy Awareness Month – Day Eighteen

Image · September 18, 2015September 1, 2015 · Leave a comment ·

Our Quinn’s List Experience: The Final Day

September 17, 2015September 18, 2015 · 1 Comment ·

Today was very low key and filled with friends and family. It was wonderful, even though it poured this morning. We prayed that the forecast of all-day rain wouldn’t be … Continue reading Our Quinn’s List Experience: The Final Day

Leukodystrophy Awareness Month – Day Seventeen

September 17, 2015September 1, 2015 · Leave a comment ·

http://www.huntershope.org/site/PageServer?pagename=unbs_supplemental

Our Quinn’s List Experience: Animal Kingdom 

September 16, 2015September 18, 2015 · 1 Comment ·

Today we went to Animal Kingdom! Tori was dressed for the occasion and looked so adorable in her giraffe attire.  We started our day at the Festival of the Lion … Continue reading Our Quinn’s List Experience: Animal Kingdom 

Leukodystrophy Awareness Month – Day Sixteen

Image · September 16, 2015September 1, 2015 · Leave a comment ·

Our Quinn’s List Experience: Magic Kingdom, Day One

September 15, 2015September 18, 2015 · 3 Comments ·

We were so blessed with amazing weather today! It started out really warm but a rain storm dropped the temperature and humidity and it was perfect! The only snag today … Continue reading Our Quinn’s List Experience: Magic Kingdom, Day One

Leukodystrophy Awareness Month – Day Fifteen

Image · September 15, 2015September 1, 2015 · Leave a comment ·

Our Quinn’s List Experience: The Travel

September 15, 2015September 18, 2015 · 1 Comment ·

Monday was a day of preparation and travel for our Disney World adventure, thanks to the Quinn Madeleine Foundation. They grant wishes for terminally ill children under the age of … Continue reading Our Quinn’s List Experience: The Travel

Leukodystrophy Awareness Month – Day Fourteen

Image · September 14, 2015September 1, 2015 · Leave a comment ·
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Even So, Joy
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