I tried an experiment this week and was both surprised and not surprised at the results. Lately I’ve been pondering limits and self-discipline, both as a result of my fitness … Continue reading The Limit Experiment
Why I Don’t Mind Tough Times
I had a realization this week that surprised me, so I’m sure it will surprise you. I don’t mind when times are tough. Note that I didn’t say I like … Continue reading Why I Don’t Mind Tough Times
Limits Bring Freedom
If you’re like me, you don’t like being told what you can and cannot do. I think it’s something with which we all struggle and it’s likely because we are … Continue reading Limits Bring Freedom
Pursuing a Companion Bill in the Senate
I had waited nearly a month for today’s meeting, but it was worth the wait. As you know by now (and if you aren’t aware, you can catch up here), … Continue reading Pursuing a Companion Bill in the Senate
God Always Provides
Two days ago I wrote this about how unexpected expenses (this week being a $413 car repair) keep eating into our budget and making things so tight for us. I … Continue reading God Always Provides
Disappointment or Gratitude
Lately we’ve been hit by multiple unexpected expenses that have thwarted our efforts to be “gazelle intense” and become debt free. It’s been discouraging, to say the least. Each time … Continue reading Disappointment or Gratitude
Respect is For Everyone
I’ve recently been in a mildly frustrating situation on a weekly basis. Tonight I decided to say something to try to change it, and it wasn’t well-received. Well, it may … Continue reading Respect is For Everyone
Krabbe Awareness Month: Day Thirty
We hope you’ve learned something new this month, but we also hope that you’ve been moved to take action.
What can you do?
- Write/call your legislators. It only takes a few minutes, and it can make a huge difference.
- Donate to organizations like Hunter’s Hope so that they can continue funding the Leukodystrophy Care Network and supporting affected families.
- Read (and tell others about) my book, Even So, Joy: Our Journey Through Heartbreak, Hope, and Triumph. We want Tori’s story to continue to touch lives and it means so much when we hear about others reading it.
Scars
I remember the doctor asking me if I would be okay with an eight inch scar on my forearm. I was seventeen, after all. Most teenage girls would probably stare … Continue reading Scars
Krabbe Awareness Month: Day Twenty-Nine
Rare diseases aren’t rare as a whole, but each individual disease is considered to be rare.
Even So, Joy 