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Even So, Joy

Weaving a Brighter Blueprint for Advocacy, Legacy, and Life.

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Leukodystrophy Awareness Month – Day Ten

Image · September 10, 2015September 1, 2015 · Leave a comment ·

Leukodystrophy Awareness Month – Day Nine

Image · September 9, 2015September 1, 2015 · Leave a comment ·

Leukodystrophy Awareness Month – Day Eight

Image · September 8, 2015September 1, 2015 · Leave a comment ·

The Hardest Thing

September 7, 2015 · 7 Comments ·

There are very few things I haven’t been able to accomplish or obtain in life with a little hard work and perseverance.  This applies to nearly everyone who is willing … Continue reading The Hardest Thing

Leukodystrophy Awareness Month – Day Seven

Image · September 7, 2015September 1, 2015 · Leave a comment ·

Traveling with Tori 

September 6, 2015 · 2 Comments ·

   I wanted to provide some insight into how (and why) we travel so often with Tori since some have asked questions related to this topic. Traveling with any baby … Continue reading Traveling with Tori 

Tori’s Bucket List: Sunrise Over the Atlantic 

September 6, 2015September 6, 2015 · 4 Comments ·

When we found out that we could go to the beach with Tori, we immediately added this to the bucket list. It was a perfect morning and she was awake … Continue reading Tori’s Bucket List: Sunrise Over the Atlantic 

Leukodystrophy Awareness Month – Day Six

Image · September 6, 2015September 1, 2015 · Leave a comment ·

Weekend at the Jersey Shore: The Boardwalk

September 5, 2015September 5, 2015 · Leave a comment ·

Last night we ventured over to the boardwalk with our cousins as we (correctly) assumed it would be much less busy than it would be the rest of the weekend. … Continue reading Weekend at the Jersey Shore: The Boardwalk

Tori’s Bucket List: Go to the Beach and Build a Sandcastle 

September 5, 2015September 5, 2015 · Leave a comment ·

Tori got to go to the beach today! This was a “must”for her Bucket List since I’m from California and we both love the ocean. She loves the sound of … Continue reading Tori’s Bucket List: Go to the Beach and Build a Sandcastle 

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