Today was a “free day” for families to do as they pleased. Most spent time at the pool and relaxed around the resort. Brennan played golf with three of the … Continue reading Hunter’s Hope Symposium: Day Four
Hunter’s Hope Symposium: Day Three
Today’s format was similar to yesterday: breakfast, seminars updating us on current research and legislation, and plenty of social time. One of the amazing things that was shared was this: … Continue reading Hunter’s Hope Symposium: Day Three
Beauty in the Midst of Brokenness…
As we have enjoyed the past few days here in New York with our leukodystrophy family, what has struck me more than anything is the love that radiates from each … Continue reading Beauty in the Midst of Brokenness…
Hunter’s Hope Symposium: Day Two
What a busy and fantastic day! Tori got to spend time with some of her buddies…this is Parker from Maryland. He is eight months old. We heard from several … Continue reading Hunter’s Hope Symposium: Day Two
Hunter’s Hope Symposium: Day One
We made it! Our day started early as we had to go pick up our rental vehicle. We decided early on that renting a bigger vehicle was essential if we … Continue reading Hunter’s Hope Symposium: Day One
The Day Before Krabbe…
Today marks six months since we have seen Tori smile. We only know the date because of this picture and the others from that day. It took us about … Continue reading The Day Before Krabbe…
TerraFit
Brennan and I are so excited to start our TerraFit challenge tomorrow! It is a 12 week program through DoTERRA that we hope will get us back into healthy habits. We both have some extra weight to lose thanks to pregnancy 😉
This program emphasizes clean eating (which we love doing but have been really bad about since Tori arrived), exercise, and teamwork. It is just the thing we both need to reestablish a healthy lifestyle.
As we start to see progress we will post our before/progress pictures.
If you are interested in learning more about TerraFit, you can check it out here.
We know it won’t be easy, but it is time to make a change.
Celebrating Independence Day
Tori has been SO alert, calm, wide-eyed, and content today! We love when we know she is feeling well and we definitely love seeing her big eyes when she has … Continue reading Celebrating Independence Day
Trying Plan A (The Nissen Saga Continues…)
Tori’s follow-up appointment with pediatric surgery today went well. She slept through most of it. 😄 This was to discuss the results of the upper G.I. study that was conducted … Continue reading Trying Plan A (The Nissen Saga Continues…)
Eleven Months! #ToriTuesday
Tori is eleven months old today! All parents lament the quickness with which time passes, but each month is even more precious for those of us whose babies … Continue reading Eleven Months! #ToriTuesday
Even So, Joy 