Tag: Leukodystrophy
The Hardest Thing
There are very few things I haven’t been able to accomplish or obtain in life with a little hard work and perseverance. This applies to nearly everyone who is willing … Continue reading The Hardest Thing
Leukodystrophy Awareness Month – Day One
September is both Leukodystrophy and Newborn Screening awareness month! Krabbe and the other leukodystrophies are so rare that most are unaware of them. Let’s change that this month. Each day … Continue reading Leukodystrophy Awareness Month – Day One
Even So, Joy 