September is both Leukodystrophy and Newborn Screening awareness month!

Krabbe and the other leukodystrophies are so rare that most are unaware of them.

Let’s change that this month.

Each day I will be posting a fact about Krabbe here as well as on Facebook.

Please share these facts, wear blue, contact your state representatives and ask them to fight for Newborn Screenings for these fatal – but often treatable – diseases!

Please help us make Krabbe known. 💙