Leukodystrophy Awareness Month – Day One

September is both Leukodystrophy and Newborn Screening awareness month!

Krabbe and the other leukodystrophies are so rare that most are unaware of them.

Let’s change that this month.

Each day I will be posting a fact about Krabbe here as well as on Facebook.

Please share these facts, wear blue, contact your state representatives and ask them to fight for Newborn Screenings for these fatal – but often treatable – diseases!

Please help us make Krabbe known. 💙

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