Disclaimer: As with anything I write, I write with the understanding that we all process death and grieving differently – even as believers – and this is not a judgment … Continue reading Removing the Sting of Death, Part Two
Exploring Red Bluff
It’s amazing how you can take your hometown for granted, how you can completely miss the beauty of where you live simply because you see it all the time. When … Continue reading Exploring Red Bluff
Removing the Sting of Death, Part One
Disclaimer: As with anything I write, I write with the understanding that we all process death and grieving differently – even as believers – and this is not a judgment … Continue reading Removing the Sting of Death, Part One
Mother’s Day Surprise
While my dad was still in Pennsylvania with us, I came up with a plan to fly to California for a week over Mother’s Day weekend as a surprise for … Continue reading Mother’s Day Surprise
Day One
Today our new life begins. A life without Tori. A life with new purpose and priorities. The visitors have stopped, the mail has slowed, the house is quiet. Tori has … Continue reading Day One
NBS Advisory Board Meeting, April 19, 2016
Yesterday, I (Lesa) had the opportunity to attend the quarterly meeting of Pennsylvania’s Newborn Screening (NBS) Advisory Board. These meetings are open to the public but members of the public … Continue reading NBS Advisory Board Meeting, April 19, 2016
The Discipline of Gratitude
I was taught a lesson (a discipline, really) during my senior year of high school that has had a profound impact on my daily life: the discipline of gratitude. A … Continue reading The Discipline of Gratitude
Call to Action in Pennsylvania
Today I (Lesa) had a meeting with the staff from Representative Angel Cruz’s office regarding the legislation they are preparing to introduce to reform the way Newborn Screening is done … Continue reading Call to Action in Pennsylvania
Krabbe and The Gradual Loss of Abilities
(I started this post a month or so ago and saved it as a draft…I feel it is still an informative post so I finished it, though I changed some … Continue reading Krabbe and The Gradual Loss of Abilities
Transparency in Grief
Several people in our lives have expressed concern that we are suppressing our grief or being “brave” for the world instead of being mournful in the wake of losing Tori. … Continue reading Transparency in Grief
Even So, Joy 