I am going to try to post an update on Tori each Tuesday from now on. #ToriTuesday 😄 Overall, Tori is doing really well. We decided to try using doTERRA … Continue reading #ToriTuesday Update
Maintaining Normalcy…
Now that we are nearly three months post-diagnosis, we are attempting to resume a “normal life” – living just like we would if she were healthy. We want to still … Continue reading Maintaining Normalcy…
Tori Update
For those who are not on Facebook, I apologize for not updating the blog lately with Tori’s progress. Here is an update with pictures! As of yesterday, Tori is 13.5 … Continue reading Tori Update
Plans Far Greater…
This appeared on my Time Hop today… It hit me in a new way this morning as I realized that it might possibly pertain to our own lives now. … Continue reading Plans Far Greater…
A Mustard Seed of Faith
I want to see my prayers do something big. In person. So often we pray for others passionately and see God move from afar. But I want to see … Continue reading A Mustard Seed of Faith
Q&A Part Three: Newborn Screening, Legislation, and Genetics
I am still so new to the Krabbe world, so I am sure there is more I could add that I don’t even know yet. If you think of more … Continue reading Q&A Part Three: Newborn Screening, Legislation, and Genetics
Q&A Part Two: Everyday Life with Tori
Below are the questions and answers pertaining to daily life with Tori ❤️ You all asked such great questions! Are you in need of help with meals, laundry, etc. for … Continue reading Q&A Part Two: Everyday Life with Tori
Dreams of Healing
I haven’t personally had dreams about Tori that I can remember (not that I often have sleep that allows dreams these days), but many people who are following our story … Continue reading Dreams of Healing
Instant Gratification and Formulas
Our culture has become so obsessed with instant gratification and three-step formulas to solve any problem. With the technology available to us today, we are able to find answers … Continue reading Instant Gratification and Formulas
Guest Post: Tori Travels Project
Hello #TeamTori friends and family! My name is Laura Gutknecht, I am a friend of Lesa’s, and I had the pleasure of traveling with her recently to Charleston, SC for a relaxing … Continue reading Guest Post: Tori Travels Project
Even So, Joy 