Tori has been in Heaven for twenty-six hours now, and while we miss her deeply, I cannot express the peace that I feel. I have often pondered over the … Continue reading No Regrets
Tag: Krabbe
Victoria Ruth’s Last Hours and the Hope of Heaven
This morning our dear Tori met Jesus face to face and was healed. Last night was my night to sleep upstairs, but I told Brennan, as always, to text or … Continue reading Victoria Ruth’s Last Hours and the Hope of Heaven
Tori’s Bucket List: Find Easter Eggs
Though finding eggs has nothing to do with the reason we celebrate Easter (the Resurrection of Jesus), it is a fun activity for children to do. It was a fun … Continue reading Tori’s Bucket List: Find Easter Eggs
Tori’s Bucket List: Jump in a Puddle
One of the greatest childhood joys is jumping in puddles. It’s as if there is a magnet pulling kids toward puddles and they just have to play in them! So, … Continue reading Tori’s Bucket List: Jump in a Puddle
A Little Miracle
We received some interesting news today in a voicemail from Dr. Escolar: She took Tori’s MRI to a neurosurgeon and it was discovered that, even though she does have extra … Continue reading A Little Miracle
Rare Disease Day at the Capitol
Today was an exciting day for Tori (and us). Today those with Rare Diseases in Pennsylvania were recognized and their advocacy efforts were applauded publicly at the Capitol. Tori and … Continue reading Rare Disease Day at the Capitol
Tori’s Bucket List: Attend a Tea Party
When Wendy Myers first asked me if Tori would like to attend a tea party, I imagined a small, simple gathering in a living room or backyard. Never would I … Continue reading Tori’s Bucket List: Attend a Tea Party
Pittsburgh, Round Five: Day Four
Today was our last day in Pittsburgh and it was a fairly easy one. Tori had lab work to check her potassium levels first thing this morning. They have stabilized … Continue reading Pittsburgh, Round Five: Day Four
Pittsburgh, Round Five: Day Three
Today Tori had a Behavioral Audiology evaluation and a chest x-ray. It was a pretty easy day. For the audiology test they played sounds and made noises to see how … Continue reading Pittsburgh, Round Five: Day Three
Pittsburgh, Round Five: Day Two
Today Tori saw Dr. Escolar and her team and had her MRI. Dr. Escolar is pleased with how Tori is doing and said our next appointment will be in six … Continue reading Pittsburgh, Round Five: Day Two
Even So, Joy 