Now that we are nearly three months post-diagnosis, we are attempting to resume a “normal life” – living just like we would if she were healthy. We want to still … Continue reading Maintaining Normalcy…
Category: Pregnancy and Parenthood
Tori Update
For those who are not on Facebook, I apologize for not updating the blog lately with Tori’s progress. Here is an update with pictures! As of yesterday, Tori is 13.5 … Continue reading Tori Update
Plans Far Greater…
This appeared on my Time Hop today… It hit me in a new way this morning as I realized that it might possibly pertain to our own lives now. … Continue reading Plans Far Greater…
Q&A Part Three: Newborn Screening, Legislation, and Genetics
I am still so new to the Krabbe world, so I am sure there is more I could add that I don’t even know yet. If you think of more … Continue reading Q&A Part Three: Newborn Screening, Legislation, and Genetics
Q&A Part Two: Everyday Life with Tori
Below are the questions and answers pertaining to daily life with Tori ❤️ You all asked such great questions! Are you in need of help with meals, laundry, etc. for … Continue reading Q&A Part Two: Everyday Life with Tori
Forgive my unbelief…
“What do you mean, ‘If I can’?” Jesus asked. “Anything is possible if a person believes.” The father instantly cried out, “I do believe, but help me overcome my unbelief!” … Continue reading Forgive my unbelief…
Bethel Redding
When your child is dying you will do anything to save their life. Though I have admittedly been a skeptic of God healing through specific people in the past, … Continue reading Bethel Redding
Faith While Grieving
If I’m completely honest, I have to admit that the subconscious grieving process officially started on diagnosis day (February 13). But there were hints of its approach weeks before as … Continue reading Faith While Grieving
A Treasured Moment…
When Tori was healthy, there was no doubt that she loved me. She would smile and talk to me, her eyes would light up when she saw me, and … Continue reading A Treasured Moment…
Physical Therapy and a Bath
One of the greatest things about Early Intervention is that Brennan and I have a say in what we work on during each session. The reasoning behind this is that … Continue reading Physical Therapy and a Bath
Even So, Joy 