For the past four months we have had the constant humming of an oxygen concentrator in our home. Every few minutes we would hear the loud noise of the … Continue reading Silence
Category: Thankfulness
No Regrets
Tori has been in Heaven for twenty-six hours now, and while we miss her deeply, I cannot express the peace that I feel. I have often pondered over the … Continue reading No Regrets
A Little Miracle
We received some interesting news today in a voicemail from Dr. Escolar: She took Tori’s MRI to a neurosurgeon and it was discovered that, even though she does have extra … Continue reading A Little Miracle
The Road Trip that Almost Was…
In early January we purchased our plane tickets for ten days in California with my family and we were SO looking forward to being out there. We had planned to … Continue reading The Road Trip that Almost Was…
Tearing Down a Wall (Literally)
Brennan and I purchased our first home a little over three years ago. It was built in 1954, has plenty of space (1,800 sq. ft spread out on three floors), … Continue reading Tearing Down a Wall (Literally)
Unexpected: Our First Year Post-Diagnosis
Brennan and I each wrote our own posts reflecting on how we were doing one year ago, and you can read them here and here if you missed them. We … Continue reading Unexpected: Our First Year Post-Diagnosis
Her Room
Her room used to be my favorite place in our home. It was clean, organized, always clutter-free. It was cheerful, colorful, calming. I made sure remained perfectly neat at all … Continue reading Her Room
Tori’s Bucket List: Wear Mama’s Wedding Dress
Some of the items we have added to Tori’s Bucket List were inspired by the lists of her Krabbe buddies. This one was first done by Anniston, and when I … Continue reading Tori’s Bucket List: Wear Mama’s Wedding Dress
Eighteen Months
Today marks Tori’s eighteen month “birthday” and it is quite a milestone in the world of Krabbe. One year ago she was six months old; today … Continue reading Eighteen Months
Tori’s Medical Equipment
I thought many of you might be interested in learning more about the various pieces of equipment in our home that help keep Tori healthy, nourished, and comfortable. Each of … Continue reading Tori’s Medical Equipment
Even So, Joy 