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Even So, Joy

Weaving a Brighter Blueprint for Advocacy, Legacy, and Life.

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The Brackbills

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Pittsburgh, Round Five: Day Two

February 24, 2016February 24, 2016 · 6 Comments ·

Today Tori saw Dr. Escolar and her team and had her MRI. Dr. Escolar is pleased with how Tori is doing and said our next appointment will be in six … Continue reading Pittsburgh, Round Five: Day Two

Unprepared

February 24, 2016March 21, 2016 · 13 Comments ·

We are taught from an early age that knowledge prepares you for what lies ahead and can usually ease the difficulty or stress of the situation. We study for exams, … Continue reading Unprepared

Pittsburgh, Round Five: Day One

February 23, 2016February 23, 2016 · 2 Comments ·

Tori had two appointments today: ophthalmology and audiology. The ophthalmologist dilated her eyes to evaluate the anatomy and we will get the results later this week.    Tori always makes … Continue reading Pittsburgh, Round Five: Day One

Update on the Implementation of Hannah’s Law

February 19, 2016February 19, 2016 · 1 Comment ·

We have an update on the status of Hannah’s Law (Act 148 of 2014). Read 2014 Act 148 – PA General Assembly here. I started making phone calls about three weeks ago … Continue reading Update on the Implementation of Hannah’s Law

Unexpected: Our First Year Post-Diagnosis

February 13, 2016February 13, 2016 · 8 Comments ·

Brennan and I each wrote our own posts reflecting on how we were doing one year ago, and you can read them here and here if you missed them. We … Continue reading Unexpected: Our First Year Post-Diagnosis

In Lesa’s Words: One Year Ago

February 12, 2016February 12, 2016 · 1 Comment ·

Brennan and I both took time to write down our thoughts and memories about how we felt one year ago. We also wrote about how we feel and what our … Continue reading In Lesa’s Words: One Year Ago

In Brennan’s Words: One Year Ago

February 12, 2016February 11, 2016 · 3 Comments ·

Brennan and I both took time to write down our thoughts and memories about how we felt one year ago. We also wrote about how we feel and what our … Continue reading In Brennan’s Words: One Year Ago

Her Room

February 11, 2016February 11, 2016 · 12 Comments ·

Her room used to be my favorite place in our home. It was clean, organized, always clutter-free. It was cheerful, colorful, calming. I made sure remained perfectly neat at all … Continue reading Her Room

Dreams of Healing, Part Seven

February 11, 2016February 10, 2016 · Leave a comment ·

Whenever people message us to share dreams they have of Tori being healthy and healed, we save and compile them into blog posts because they are so interesting to us … Continue reading Dreams of Healing, Part Seven

Tori’s Bucket List: Join a Hockey Team

February 10, 2016February 10, 2016 · Leave a comment ·

We were recently contacted by a woman whose daughter plays for one of the Hershey Jr. Bears hockey teams. She was touched by Tori’s story and said they really wanted … Continue reading Tori’s Bucket List: Join a Hockey Team

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Even So, Joy
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