Some of the items we have added to Tori’s Bucket List were inspired by the lists of her Krabbe buddies. This one was first done by Anniston, and when I … Continue reading Tori’s Bucket List: Wear Mama’s Wedding Dress
One Year Ago Today: The Leukodystrophy Diagnosis
After Tori’s MRI on February 4th, we received a call from a neurologist inviting us to come in to discuss the results. It was in the middle of the … Continue reading One Year Ago Today: The Leukodystrophy Diagnosis
One Year Ago: The First MRI
Tori’s first MRI was one year ago today. We blogged about it here and here. We didn’t see the images of the MRI (or learn in detail … Continue reading One Year Ago: The First MRI
Vision Therapy Fun
Tori’s vision therapist always finds really creative ways to stimulate Tori’s senses – today we celebrated Mardi Gras a bit early 🙂 Besides looking at various items, Tori felt and … Continue reading Vision Therapy Fun
Eighteen Months
Today marks Tori’s eighteen month “birthday” and it is quite a milestone in the world of Krabbe. One year ago she was six months old; today … Continue reading Eighteen Months
Tori’s Medical EquipmentÂ
I thought many of you might be interested in learning more about the various pieces of equipment in our home that help keep Tori healthy, nourished, and comfortable. Each of … Continue reading Tori’s Medical EquipmentÂ
Tori’s Bucket List: Build a Snowman
We had to wait much longer than we had anticipated to finish this adventure because we didn’t get any snow until this weekend! The neat thing about this is that … Continue reading Tori’s Bucket List: Build a Snowman
The Playroom
Her toys sit where they were first placed one year ago, nearly untouched and gathering layers of dust. The special place in the basement that we created for her playtime, … Continue reading The Playroom
Tori Update
Besides the fact that today marks one year since Tori last smiled, there is a great deal for which we are thankful. Tori has been doing amazingly well since we … Continue reading Tori Update
Sensitivity and Personal ResponsibilityÂ
Someone recently asked me a question that I thought was worthy of an entire blog post because it is something that needs to be addressed in our culture. I was … Continue reading Sensitivity and Personal ResponsibilityÂ
Even So, Joy 