Rarely does a day go by where I am not brought to tears because of the realities of Krabbe and the destruction it brings to its innocent victims – my … Continue reading I Hate Krabbe
Tag: Krabbe
Reality Check
Lately I have been able to go days without thinking about the reality that Tori is dying. She has been so stable, so calm, so content. So, it was … Continue reading Reality Check
#ToriTuesday Update
It’s been busy since we got back from Pittsburgh last Thursday! We unpacked and immediately repacked for a weekend of houseparenting at MHS (Milton Hershey School). Tori turned ten months … Continue reading #ToriTuesday Update
On Motherhood and the Future
Everyone told me that it would be different with my own kids, and I prayed that they were right because kids have never been my forte. Teens, yes. Babies and … Continue reading On Motherhood and the Future
Pittsburgh, Round Two continued…
Last night we ended up being in the ER for nearly three hours just to have her g-tube replaced (wish we had received our spare tube by then! We could … Continue reading Pittsburgh, Round Two continued…
Pittsburgh, Round Two #ToriTuesday
What a day! We took the train to Pittsburgh this afternoon for Tori’s three month follow-up appointment with Dr. Escolar tomorrow. The train ride went smoothly except for one thing: … Continue reading Pittsburgh, Round Two #ToriTuesday
“…where everybody knows your name…”
When I go to the dentist I do not expect them to remember my name or who I am – after all, I am only there twice a year for … Continue reading “…where everybody knows your name…”
#ToriTuesday Update
It has been an exciting day for Tori! Haha. She had her opthalmology follow-up this morning in Hershey and then the E.I. nutritionist came to weigh and measure her. First, … Continue reading #ToriTuesday Update
What Will (Likely) Never Be…
Most days, Brennan and I do well with our reality regarding Tori. I’m not a very emotional woman normally, so it has been fairly easy in the past couple of … Continue reading What Will (Likely) Never Be…
Dreams of Healing, Part Two
We are fascinated by the dreams people continue to have of Tori being healed. You can see the first post about dreams here. While we cannot be certain that these … Continue reading Dreams of Healing, Part Two
Even So, Joy 