O death, where is your victory? O death, where is your sting? For sin is the sting that results in death, and the law gives sin its power. But thank … Continue reading Laying Tori to Rest
Tag: Leukodystrophy
Tori’s Bucket List: Sleepover
We decided to retroactively add this to Tori’s Bucket List because the sweet moment occurred before we created her List. We had hoped to recreate this one with even more … Continue reading Tori’s Bucket List: Sleepover
A Prophetic Note Received
I started this draft of this post over a month ago, and I never posted it for some reason. Now I am glad that I hadn’t posted it because God … Continue reading A Prophetic Note Received
Silence
For the past four months we have had the constant humming of an oxygen concentrator in our home. Every few minutes we would hear the loud noise of the … Continue reading Silence
Victoria Ruth’s Last Hours and the Hope of Heaven
This morning our dear Tori met Jesus face to face and was healed. Last night was my night to sleep upstairs, but I told Brennan, as always, to text or … Continue reading Victoria Ruth’s Last Hours and the Hope of Heaven
Tori’s Bucket List: Find Easter Eggs
Though finding eggs has nothing to do with the reason we celebrate Easter (the Resurrection of Jesus), it is a fun activity for children to do. It was a fun … Continue reading Tori’s Bucket List: Find Easter Eggs
Tori’s Bucket List: Jump in a Puddle
One of the greatest childhood joys is jumping in puddles. It’s as if there is a magnet pulling kids toward puddles and they just have to play in them! So, … Continue reading Tori’s Bucket List: Jump in a Puddle
Rare Disease Day at the Capitol
Today was an exciting day for Tori (and us). Today those with Rare Diseases in Pennsylvania were recognized and their advocacy efforts were applauded publicly at the Capitol. Tori and … Continue reading Rare Disease Day at the Capitol
Tori’s Bucket List: Attend a Tea Party
When Wendy Myers first asked me if Tori would like to attend a tea party, I imagined a small, simple gathering in a living room or backyard. Never would I … Continue reading Tori’s Bucket List: Attend a Tea Party
Pittsburgh, Round Five: Day Four
Today was our last day in Pittsburgh and it was a fairly easy one. Tori had lab work to check her potassium levels first thing this morning. They have stabilized … Continue reading Pittsburgh, Round Five: Day Four
Even So, Joy 