Her room used to be my favorite place in our home. It was clean, organized, always clutter-free. It was cheerful, colorful, calming. I made sure remained perfectly neat at all … Continue reading Her Room
Category: Faith
Dreams of Healing, Part Seven
Whenever people message us to share dreams they have of Tori being healthy and healed, we save and compile them into blog posts because they are so interesting to us … Continue reading Dreams of Healing, Part Seven
One Year Ago: The First MRI
Tori’s first MRI was one year ago today. We blogged about it here and here. We didn’t see the images of the MRI (or learn in detail … Continue reading One Year Ago: The First MRI
Eighteen Months
Today marks Tori’s eighteen month “birthday” and it is quite a milestone in the world of Krabbe. One year ago she was six months old; today … Continue reading Eighteen Months
Sensitivity and Personal Responsibility
Someone recently asked me a question that I thought was worthy of an entire blog post because it is something that needs to be addressed in our culture. I was … Continue reading Sensitivity and Personal Responsibility
How 2015 Turned Out Differently
For the past few years, I, along with many others, have chosen a word or two to focus on for the year for personal growth. I had completely forgotten about … Continue reading How 2015 Turned Out Differently
A Week of Lasts
Most parents reminisce about their child’s firsts – first word, first steps, first everything. It’s exciting to watch our children learn and grow as they explore their new world. For … Continue reading A Week of Lasts
On Hospice and Heaven
I was previously under the impression that hospice was only called in when death was imminent, that it was a service used only in a person’s last days. So, when … Continue reading On Hospice and Heaven
Ten Months Later
Tori was admitted to the hospital almost exactly ten months ago for a feeding tube pre-diagnosis. That hospital experience was incredibly stressful because we felt like we were in … Continue reading Ten Months Later
Tori’s Bucket List: Pedicure with Mama
Being raised in California, pedicures have long been a favorite of mine. When I was pregnant with Tori, my mom took me to get a pedicure for Mother’s Day and … Continue reading Tori’s Bucket List: Pedicure with Mama
Even So, Joy 