As we thought of fun Christmas activities for Tori to do, the idea of making a gingerbread house came up pretty early. It was something we had never done ourselves, … Continue reading Tori’s Bucket List: Make a Gingerbread House
On Hospice and Heaven
I was previously under the impression that hospice was only called in when death was imminent, that it was a service used only in a person’s last days. So, when … Continue reading On Hospice and Heaven
Home!
Tori was discharged from the hospital around 1:30pm on Sunday! Her sodium has remained steady since they stopped one of her meds. We will continue to add a sodium mixture … Continue reading Home!
Tori’s Bucket List: See The Hotel Hershey’s Christmas Tree
If you haven’t seen The Hotel Hershey at Christmas, you’re missing out. It is a beautiful hotel any time of the year, but it’s extra special at Christmas and we … Continue reading Tori’s Bucket List: See The Hotel Hershey’s Christmas Tree
Tori’s Bucket List: Go to a Hershey Bears Game and Meet Coco
One of the first ideas that came to mind as we created Tori’s Bucket List was to attend a Hershey Bears Game, and we decided to go with Brennan’s mom and … Continue reading Tori’s Bucket List: Go to a Hershey Bears Game and Meet Coco
Updates on Tori
A few updates for those not on Facebook: Her last sodium level was 139, which is a heathy level. Her respiratory virus panel came back negative so she isn’t sick. … Continue reading Updates on Tori
Ten Months Later
Tori was admitted to the hospital almost exactly ten months ago for a feeding tube pre-diagnosis. That hospital experience was incredibly stressful because we felt like we were in … Continue reading Ten Months Later
Hair Donation #5
I have been blessed with healthy, thick hair and I have a lot of it. It is perfect for donating, so I have continued to grow it out for eight … Continue reading Hair Donation #5
Sodium and Other Updates
We finally got into a room around midnight and by then I was even more exhausted than I usually am. Of course, even though I had already gone over our … Continue reading Sodium and Other Updates
Back in the Hospital
One thing we’ve learned about our Tori is that she goes all in. Rarely is anything subtle or gradual. We brought Tori to the ER tonight because her breathing changed … Continue reading Back in the Hospital
Even So, Joy 