Brennan and I purchased our first home a little over three years ago. It was built in 1954, has plenty of space (1,800 sq. ft spread out on three floors), … Continue reading Tearing Down a Wall (Literally)
Tori’s Bucket List: Attend a Tea Party
When Wendy Myers first asked me if Tori would like to attend a tea party, I imagined a small, simple gathering in a living room or backyard. Never would I … Continue reading Tori’s Bucket List: Attend a Tea Party
Pittsburgh, Round Five: Day Four
Today was our last day in Pittsburgh and it was a fairly easy one. Tori had lab work to check her potassium levels first thing this morning. They have stabilized … Continue reading Pittsburgh, Round Five: Day Four
Pittsburgh, Round Five: Day Three
Today Tori had a Behavioral Audiology evaluation and a chest x-ray. It was a pretty easy day. For the audiology test they played sounds and made noises to see how … Continue reading Pittsburgh, Round Five: Day Three
Pittsburgh, Round Five: Day Two
Today Tori saw Dr. Escolar and her team and had her MRI. Dr. Escolar is pleased with how Tori is doing and said our next appointment will be in six … Continue reading Pittsburgh, Round Five: Day Two
Unprepared
We are taught from an early age that knowledge prepares you for what lies ahead and can usually ease the difficulty or stress of the situation. We study for exams, … Continue reading Unprepared
Pittsburgh, Round Five: Day One
Tori had two appointments today: ophthalmology and audiology. The ophthalmologist dilated her eyes to evaluate the anatomy and we will get the results later this week. Tori always makes … Continue reading Pittsburgh, Round Five: Day One
Update on the Implementation of Hannah’s Law
We have an update on the status of Hannah’s Law (Act 148 of 2014). Read 2014 Act 148 – PA General Assembly here. I started making phone calls about three weeks ago … Continue reading Update on the Implementation of Hannah’s Law
Unexpected: Our First Year Post-Diagnosis
Brennan and I each wrote our own posts reflecting on how we were doing one year ago, and you can read them here and here if you missed them. We … Continue reading Unexpected: Our First Year Post-Diagnosis
In Lesa’s Words: One Year Ago
Brennan and I both took time to write down our thoughts and memories about how we felt one year ago. We also wrote about how we feel and what our … Continue reading In Lesa’s Words: One Year Ago
Even So, Joy 