Today Tori had a Behavioral Audiology evaluation and a chest x-ray. It was a pretty easy day. For the audiology test they played sounds and made noises to see how … Continue reading Pittsburgh, Round Five: Day Three
Tag: Leukodystrophy
Unprepared
We are taught from an early age that knowledge prepares you for what lies ahead and can usually ease the difficulty or stress of the situation. We study for exams, … Continue reading Unprepared
Update on the Implementation of Hannah’s Law
We have an update on the status of Hannah’s Law (Act 148 of 2014). Read 2014 Act 148 – PA General Assembly here. I started making phone calls about three weeks ago … Continue reading Update on the Implementation of Hannah’s Law
Unexpected: Our First Year Post-Diagnosis
Brennan and I each wrote our own posts reflecting on how we were doing one year ago, and you can read them here and here if you missed them. We … Continue reading Unexpected: Our First Year Post-Diagnosis
In Lesa’s Words: One Year Ago
Brennan and I both took time to write down our thoughts and memories about how we felt one year ago. We also wrote about how we feel and what our … Continue reading In Lesa’s Words: One Year Ago
In Brennan’s Words: One Year Ago
Brennan and I both took time to write down our thoughts and memories about how we felt one year ago. We also wrote about how we feel and what our … Continue reading In Brennan’s Words: One Year Ago
Tori’s Bucket List: Join a Hockey Team
We were recently contacted by a woman whose daughter plays for one of the Hershey Jr. Bears hockey teams. She was touched by Tori’s story and said they really wanted … Continue reading Tori’s Bucket List: Join a Hockey Team
One Year Ago Today: The Leukodystrophy Diagnosis
After Tori’s MRI on February 4th, we received a call from a neurologist inviting us to come in to discuss the results. It was in the middle of the … Continue reading One Year Ago Today: The Leukodystrophy Diagnosis
One Year Ago: The First MRI
Tori’s first MRI was one year ago today. We blogged about it here and here. We didn’t see the images of the MRI (or learn in detail … Continue reading One Year Ago: The First MRI
Vision Therapy Fun
Tori’s vision therapist always finds really creative ways to stimulate Tori’s senses – today we celebrated Mardi Gras a bit early 🙂 Besides looking at various items, Tori felt and … Continue reading Vision Therapy Fun
Even So, Joy 