Today Tori saw Dr. Escolar and her team and had her MRI. Dr. Escolar is pleased with how Tori is doing and said our next appointment will be in six … Continue reading Pittsburgh, Round Five: Day Two
Today Tori saw Dr. Escolar and her team and had her MRI. Dr. Escolar is pleased with how Tori is doing and said our next appointment will be in six … Continue reading Pittsburgh, Round Five: Day Two
Tori’s first MRI was one year ago today. We blogged about it here and here. We didn’t see the images of the MRI (or learn in detail … Continue reading One Year Ago: The First MRI
I spoke with Dr. Escolar this morning and received the results of Tori’s August MRI. Dr. Escolar said that the volume of her brain has shrunk further and there is … Continue reading Tori’s MRI Results
Today was a very busy day and we are all so tired. We started with Tori’s vision and physical therapy evaluations at Dr. Escolar’s office. We then ran … Continue reading Pittsburgh, Round Three: Day Two
Tori will have another MRI in twenty days, a follow-up to the two done in February…
…the two that confirmed that her brain was damaged beyond repair by a then undiagnosed (but suspected) disease.
I remember that day so clearly – February 6, 2015. 10:45am.
My mom and I took Tori to her neurologist to review the MRI images and discuss the results.
Brennan didn’t come because we didn’t realize just how significant that day would be in our lives – we thought it was going to be routine. Fixable.
Even to my untrained eyes, it was evident that something was severely wrong based on those images.
Brennan has still never seen the MRIs (not intentionally – just haven’t had a chance to have someone show them to us again). He says he doesn’t think he wants to see them.
Tori had another MRI done two weeks later in Pittsburgh by Dr. Escolar to ensure that her specific protocol was followed so that the disease could be fully seen, and we haven’t had a chance to see those images either – we were far too grieved during that first visit to even think about asking.
It has now been six months since the first MRI and next Friday will be six months post-diagnosis.
When we travel to Pittsburgh at the end of the month, Dr. Escolar will perform another MRI to see what progression the disease has made.
This time we will ask to see them.
Shortly after Tori was diagnosed I had a thought that has been my prayer until now: that the next MRI would show unexplainable improvement. That Dr. E would be astonished, unsure of what she saw.
That they would want to make sure it was Tori’s brain they had scanned.
We cling to hope but remain firmly rooted in reality, knowing that this could be God’s plan for her.
BUT…what if His plan is for her to be healed? For His power to be shown through her?
What if He has world-changing plans for our little girl?
Please pray with us for unexplainable improvement twenty days from now (August 27). Pray for a miracle.
We will hope until the end that God will heal her – we serve a God who works outside of time, so He is never late.
August 27th, 1:45pm. Please join us in prayer before and during the MRI.
God can do this!