Rarely does a day go by where I am not brought to tears because of the realities of Krabbe and the destruction it brings to its innocent victims – my … Continue reading I Hate Krabbe
Tag: Tori
Quilt of Love
My cousin Danette asked for family and friends to create quilt squares for Tori months ago, and I was so surprised to receive it tonight! Thank you to all who … Continue reading Quilt of Love
Reality Check
Lately I have been able to go days without thinking about the reality that Tori is dying. She has been so stable, so calm, so content. So, it was … Continue reading Reality Check
#ToriTuesday Update
It’s been busy since we got back from Pittsburgh last Thursday! We unpacked and immediately repacked for a weekend of houseparenting at MHS (Milton Hershey School). Tori turned ten months … Continue reading #ToriTuesday Update
On Motherhood and the Future
Everyone told me that it would be different with my own kids, and I prayed that they were right because kids have never been my forte. Teens, yes. Babies and … Continue reading On Motherhood and the Future
Pittsburgh, Round Two continued…
Last night we ended up being in the ER for nearly three hours just to have her g-tube replaced (wish we had received our spare tube by then! We could … Continue reading Pittsburgh, Round Two continued…
Pittsburgh, Round Two #ToriTuesday
What a day! We took the train to Pittsburgh this afternoon for Tori’s three month follow-up appointment with Dr. Escolar tomorrow. The train ride went smoothly except for one thing: … Continue reading Pittsburgh, Round Two #ToriTuesday
“…where everybody knows your name…”
When I go to the dentist I do not expect them to remember my name or who I am – after all, I am only there twice a year for … Continue reading “…where everybody knows your name…”
#ToriTuesday Update
It has been an exciting day for Tori! Haha. She had her opthalmology follow-up this morning in Hershey and then the E.I. nutritionist came to weigh and measure her. First, … Continue reading #ToriTuesday Update
What Will (Likely) Never Be…
Most days, Brennan and I do well with our reality regarding Tori. I’m not a very emotional woman normally, so it has been fairly easy in the past couple of … Continue reading What Will (Likely) Never Be…
Even So, Joy 