I was previously under the impression that hospice was only called in when death was imminent, that it was a service used only in a person’s last days. So, when … Continue reading On Hospice and Heaven
Category: Family…
Home!
Tori was discharged from the hospital around 1:30pm on Sunday! Her sodium has remained steady since they stopped one of her meds. We will continue to add a sodium mixture … Continue reading Home!
Tori’s Bucket List: See The Hotel Hershey’s Christmas Tree
If you haven’t seen The Hotel Hershey at Christmas, you’re missing out. It is a beautiful hotel any time of the year, but it’s extra special at Christmas and we … Continue reading Tori’s Bucket List: See The Hotel Hershey’s Christmas Tree
Tori’s Bucket List: Go to a Hershey Bears Game and Meet Coco
One of the first ideas that came to mind as we created Tori’s Bucket List was to attend a Hershey Bears Game, and we decided to go with Brennan’s mom and … Continue reading Tori’s Bucket List: Go to a Hershey Bears Game and Meet Coco
Ten Months Later
Tori was admitted to the hospital almost exactly ten months ago for a feeding tube pre-diagnosis. That hospital experience was incredibly stressful because we felt like we were in … Continue reading Ten Months Later
Sodium and Other Updates
We finally got into a room around midnight and by then I was even more exhausted than I usually am. Of course, even though I had already gone over our … Continue reading Sodium and Other Updates
Back in the Hospital
One thing we’ve learned about our Tori is that she goes all in. Rarely is anything subtle or gradual. We brought Tori to the ER tonight because her breathing changed … Continue reading Back in the Hospital
Tori’s Bucket List: Go To a Philadelphia Flyers Game
Any children of ours will grow up to be Philadelphia fans if Brennan has anything to say about it. Brennan loves the Phillies, Eagles, and, of course, the Flyers. This … Continue reading Tori’s Bucket List: Go To a Philadelphia Flyers Game
Tori’s Bucket List: Decorate Our Christmas Tree
After cutting down our own tree, we put Tori in her stander and got to work decorating it!
We let her feel many of the different textures on the ornaments before putting them on the tree at her eye level.
Her 2015 ornament is a giraffe (of course) from the Pittsburgh Zoo ❤️
Each Christmas is filled with family traditions and this is only the beginning 😄 We have much more planned for our precious girl.
Tori’s Bucket List: Cut Our Own Christmas Tree
One of my favorite traditions growing up was going into the mountains to cut our own Christmas tree each year as a family. We would take hot cocoa in a … Continue reading Tori’s Bucket List: Cut Our Own Christmas Tree
Even So, Joy 