We are asked several times a week how people can help us practically and tangibly, and we usually don’t have an answer. God is taking amazing care of us and … Continue reading How You Can Help
Category: Pregnancy and Parenthood
Tori’s Bucket List: Harrisburg Senators Game
I’m not sure I can adequately express how amazing today was! After a six hour break at home, we headed to City Island as a guest of the Senators. They … Continue reading Tori’s Bucket List: Harrisburg Senators Game
Tori’s Bucket List: Floating Down the River
When we were putting the list of adventures together, we wanted to take Tori to a local water park to float down the river. We knew it would be peaceful … Continue reading Tori’s Bucket List: Floating Down the River
Tori’s Bucket List: Feeding the Ducks
One of my favorite childhood memories is of feeding the ducks by the river in my hometown. Most children love it, so we wanted Tori to experience it! Aunt Kelly … Continue reading Tori’s Bucket List: Feeding the Ducks
A Life Well-Lived
All of us hope that there is a magnificent purpose for our lives, that there is meaning in our existence. We all want to have an impact on the world … Continue reading A Life Well-Lived
Parenthood and the Unexpected
Brennan and I never expected our lives as parents to go this way – who does? No one has a child expecting to only have them for a few … Continue reading Parenthood and the Unexpected
Bucket List Update
We received confirmation tonight that we are going to Disney World in September thanks to the Quinn Madeleine Foundation! This was the biggest item on Tori’s Bucket List and we … Continue reading Bucket List Update
#ToriTuesday Update
Time for an update! She had her one-year check-up on Friday and got shots as well. She did really well and her pediatrician is pleased with her health. We picked … Continue reading #ToriTuesday Update
Dreams of Healing, Part Four
We have been continually amazed at the dreams that people are having about Tori and we pray that they are prophetic. If you ever have a dream about Tori being … Continue reading Dreams of Healing, Part Four
Holding on to Hope…
Tori will have another MRI in twenty days, a follow-up to the two done in February…
…the two that confirmed that her brain was damaged beyond repair by a then undiagnosed (but suspected) disease.
I remember that day so clearly – February 6, 2015. 10:45am.
My mom and I took Tori to her neurologist to review the MRI images and discuss the results.
Brennan didn’t come because we didn’t realize just how significant that day would be in our lives – we thought it was going to be routine. Fixable.
Even to my untrained eyes, it was evident that something was severely wrong based on those images.
Brennan has still never seen the MRIs (not intentionally – just haven’t had a chance to have someone show them to us again). He says he doesn’t think he wants to see them.
Tori had another MRI done two weeks later in Pittsburgh by Dr. Escolar to ensure that her specific protocol was followed so that the disease could be fully seen, and we haven’t had a chance to see those images either – we were far too grieved during that first visit to even think about asking.
It has now been six months since the first MRI and next Friday will be six months post-diagnosis.
When we travel to Pittsburgh at the end of the month, Dr. Escolar will perform another MRI to see what progression the disease has made.
This time we will ask to see them.
Shortly after Tori was diagnosed I had a thought that has been my prayer until now: that the next MRI would show unexplainable improvement. That Dr. E would be astonished, unsure of what she saw.
That they would want to make sure it was Tori’s brain they had scanned.
We cling to hope but remain firmly rooted in reality, knowing that this could be God’s plan for her.
BUT…what if His plan is for her to be healed? For His power to be shown through her?
What if He has world-changing plans for our little girl?
Please pray with us for unexplainable improvement twenty days from now (August 27). Pray for a miracle.
We will hope until the end that God will heal her – we serve a God who works outside of time, so He is never late.
August 27th, 1:45pm. Please join us in prayer before and during the MRI.
God can do this!
Even So, Joy 