When Wendy Myers first asked me if Tori would like to attend a tea party, I imagined a small, simple gathering in a living room or backyard. Never would I … Continue reading Tori’s Bucket List: Attend a Tea Party
Category: Blessings
Unexpected: Our First Year Post-Diagnosis
Brennan and I each wrote our own posts reflecting on how we were doing one year ago, and you can read them here and here if you missed them. We … Continue reading Unexpected: Our First Year Post-Diagnosis
Eighteen Months
Today marks Tori’s eighteen month “birthday” and it is quite a milestone in the world of Krabbe. One year ago she was six months old; today … Continue reading Eighteen Months
How 2015 Turned Out Differently
For the past few years, I, along with many others, have chosen a word or two to focus on for the year for personal growth. I had completely forgotten about … Continue reading How 2015 Turned Out Differently
Tori’s Bucket List: Picture with Santa
My parents had mentioned that they would love to have a photo of Tori with Santa, but with her being in the hospital – and the normal holiday and family … Continue reading Tori’s Bucket List: Picture with Santa
On Hospice and Heaven
I was previously under the impression that hospice was only called in when death was imminent, that it was a service used only in a person’s last days. So, when … Continue reading On Hospice and Heaven
Hair Donation #5
I have been blessed with healthy, thick hair and I have a lot of it. It is perfect for donating, so I have continued to grow it out for eight … Continue reading Hair Donation #5
Tori’s Bucket List: Decorate Our Christmas Tree
After cutting down our own tree, we put Tori in her stander and got to work decorating it!
We let her feel many of the different textures on the ornaments before putting them on the tree at her eye level.
Her 2015 ornament is a giraffe (of course) from the Pittsburgh Zoo ❤️
Each Christmas is filled with family traditions and this is only the beginning 😄 We have much more planned for our precious girl.
Tori’s Bucket List: Cut Our Own Christmas Tree
One of my favorite traditions growing up was going into the mountains to cut our own Christmas tree each year as a family. We would take hot cocoa in a … Continue reading Tori’s Bucket List: Cut Our Own Christmas Tree
Tori’s Bucket List: Ride Santa’s Surprise Train
Our local railroad does special Christmas-themed train rides after Thanksgiving. Brennan and I took a train ride with them two years ago (read about it here) and we knew it … Continue reading Tori’s Bucket List: Ride Santa’s Surprise Train
Even So, Joy 