I started this draft of this post over a month ago, and I never posted it for some reason. Now I am glad that I hadn’t posted it because God … Continue reading A Prophetic Note Received
I started this draft of this post over a month ago, and I never posted it for some reason. Now I am glad that I hadn’t posted it because God … Continue reading A Prophetic Note Received
For the past four months we have had the constant humming of an oxygen concentrator in our home. Every few minutes we would hear the loud noise of the … Continue reading Silence
Tori has been in Heaven for twenty-six hours now, and while we miss her deeply, I cannot express the peace that I feel. I have often pondered over the … Continue reading No Regrets
Last year (right after Tori’s diagnosis), I was invited to attend a beautiful evening for mothers called “A Night to Breathe” and it was such a refreshing event. It was … Continue reading A Night to Breathe
In early January we purchased our plane tickets for ten days in California with my family and we were SO looking forward to being out there. We had planned to … Continue reading The Road Trip that Almost Was…
We have an update on the status of Hannah’s Law (Act 148 of 2014). Read 2014 Act 148 – PA General Assembly here. I started making phone calls about three weeks ago … Continue reading Update on the Implementation of Hannah’s Law
Brennan and I each wrote our own posts reflecting on how we were doing one year ago, and you can read them here and here if you missed them. We … Continue reading Unexpected: Our First Year Post-Diagnosis
Brennan and I both took time to write down our thoughts and memories about how we felt one year ago. We also wrote about how we feel and what our … Continue reading In Lesa’s Words: One Year Ago
Her room used to be my favorite place in our home. It was clean, organized, always clutter-free. It was cheerful, colorful, calming. I made sure remained perfectly neat at all … Continue reading Her Room
Her toys sit where they were first placed one year ago, nearly untouched and gathering layers of dust. The special place in the basement that we created for her playtime, … Continue reading The Playroom