We received confirmation tonight that we are going to Disney World in September thanks to the Quinn Madeleine Foundation! This was the biggest item on Tori’s Bucket List and we … Continue reading Bucket List Update
We received confirmation tonight that we are going to Disney World in September thanks to the Quinn Madeleine Foundation! This was the biggest item on Tori’s Bucket List and we … Continue reading Bucket List Update
Time for an update! She had her one-year check-up on Friday and got shots as well. She did really well and her pediatrician is pleased with her health. We picked … Continue reading #ToriTuesday Update
If I am being honest, lately I have been struggling to pray for Tori’s healing. I ask others to do it but I can’t form the words in my own heart and mind. I feel stuck. Numb. Defeated.
I absolutely still want it and believe that it can happen, but doubt has worked its way into my heart and mind, and lately I doubt that God is going to heal her here on earth. Because of this doubt, I struggle to pray. I start but the words just don’t come.
It is times like this when I am most thankful that we don’t have to pray with words. God knows our hearts, and His Word tells us that the Holy Spirit intercedes for us when we don’t know what to say (Romans 8:26).
I still struggle with hope because hope is difficult. Yet I still desperately want her to be healed on earth. Desperately.
In a dream that a friend had recently, I wasn’t able to see an older, healed Tori in a picture on a wall. She could see her, but I couldn’t.
I’ve been thinking about this ever since she shared the dream because I think God is trying to tell me something.
My friend has been praying about the meaning and suggested this: that no matter what, I need to see her as being healed, because she IS healed somewhere.
I’m still praying about the meaning. And I’m praying that this dream in particular is prophetic…that Tori will be the older sibling to many other children and that she will be healthy…that her testimony will change the world.
“Then like a hero who takes the stage when
We’re on the edge of our seats saying it’s too late…”– MercyMe, “Flawless”
It seems like God speaks through His Word and the words of those seeking Him when I am struggling the most.
He keeps bringing stories of healing to my attention, and while these accounts are encouraging, it also leaves me wondering why He is bringing these forward. Is He going to heal her?
This happened two months ago in my daily Bible reading (the Bible is split into 365 readings, dated, not a “pick your own reading” type of thing). It also happened about two weeks ago when I finally found our Kindle Charger and was able to scroll through the hundreds of free eBooks we have obtained since we lost the charger.
The eBook “The Same Love” by Paul Baloche (a well-known songwriter) caught my attention so I opened it and began reading.
What was the first chapter about? Healing. Timing. Love.
Baloche started with Mark 5:21-43 which shows two healings – one of a woman who had been bleeding for 12 years, and one of a young girl who was sick and died but Jesus brought her back to life.
The woman seemingly derailed Jesus from getting to the young girl in time, but what this proved was that Jesus works outside of “time” and He is NEVER late. He created time and is not restrained by it.
I love the way that the author paraphrases the scene between Jairus and Jesus after his daughter has died:
Jesus had barely finished speaking when several people ran up. Jairus, it’s too late. She’s gone.
Jesus moved between Jairus and the distraction. This moment is about you and what you say you believe. This can end here, or we can keep going. What do you say?
(The Same Love, Chapter 1)
The author points out that all those involved in this passage experienced the same love, the love of God. Just like we do today. Yet, even those who walked with Jesus in person also experienced doubt. Amazing, isn’t it, that those who saw with their own eyes the miracles that Jesus did still doubted?
Shouldn’t we admit, though, that even after experiencing this love, we’ve entertained doubts? And though we have seen answers to prayers, some questions still remain? In this life we experience the discipline of holiness alongside the inevitable humanity of sinfulness. And between these opposing realities, we’re daily called to choose to pledge our allegiance to the God who never leaves us, committing afresh to walk the walk of faith. God’s unwavering love for us continues, even when ours falters…
Faith by its very definition is belief in that which is unseen. It’s believing that the same love that spread the heavens wide and was crucified and raised Jairus’s little girl and sent a woman back into her new life is calling to you today. Your circumstances will be unique to you. Maybe the same love is challenging you to choose what you believe. Maybe you’re being asked to bravely step out and let everyone see you and your story…
(The Same Love, Chapter 1)
While these words are so encouraging, and so seemingly meant just for me right now, I still have no idea what God is going to do in Tori’s life…and that’s okay.
We are definitely called to let others see our story, which is why we are being as open and transparent as we can along the way.
We wonder if God is going to heal Tori here or in Heaven.
If here, we wonder when and how. Gradual? Immediate?
We wonder how long she will be with us.
So much wondering, not enough trusting.
We need to stop creating scenes in our head and instead trust the One who wrote the entire play.
Whether He heals her now or later, we know He is going to heal her. She is healed. It may not be the way our hearts would prefer, but we trust that God is good and has an amazing purpose for all of this that we simply can’t see at the moment. This is Act One, and Act Three is many pages away.
We aren’t meant to understand right now – we are meant to trust Him and keep on walking.
Our God is never late. Our God loves us deeply and created us with purpose. He will heal her in HIS timing, in HIS way; we need to trust Him in this and with this.
“What do you mean, ‘If I can’?” Jesus asked.
“Anything is possible if a person believes.”The father instantly cried out, “I do believe,
but help me overcome my unbelief!”
Mark 9:23-24
We have been continually amazed at the dreams that people are having about Tori and we pray that they are prophetic. If you ever have a dream about Tori being … Continue reading Dreams of Healing, Part Four
Tori will have another MRI in twenty days, a follow-up to the two done in February…
…the two that confirmed that her brain was damaged beyond repair by a then undiagnosed (but suspected) disease.
I remember that day so clearly – February 6, 2015. 10:45am.
My mom and I took Tori to her neurologist to review the MRI images and discuss the results.
Brennan didn’t come because we didn’t realize just how significant that day would be in our lives – we thought it was going to be routine. Fixable.
Even to my untrained eyes, it was evident that something was severely wrong based on those images.
Brennan has still never seen the MRIs (not intentionally – just haven’t had a chance to have someone show them to us again). He says he doesn’t think he wants to see them.
Tori had another MRI done two weeks later in Pittsburgh by Dr. Escolar to ensure that her specific protocol was followed so that the disease could be fully seen, and we haven’t had a chance to see those images either – we were far too grieved during that first visit to even think about asking.
It has now been six months since the first MRI and next Friday will be six months post-diagnosis.
When we travel to Pittsburgh at the end of the month, Dr. Escolar will perform another MRI to see what progression the disease has made.
This time we will ask to see them.
Shortly after Tori was diagnosed I had a thought that has been my prayer until now: that the next MRI would show unexplainable improvement. That Dr. E would be astonished, unsure of what she saw.
That they would want to make sure it was Tori’s brain they had scanned.
We cling to hope but remain firmly rooted in reality, knowing that this could be God’s plan for her.
BUT…what if His plan is for her to be healed? For His power to be shown through her?
What if He has world-changing plans for our little girl?
Please pray with us for unexplainable improvement twenty days from now (August 27). Pray for a miracle.
We will hope until the end that God will heal her – we serve a God who works outside of time, so He is never late.
August 27th, 1:45pm. Please join us in prayer before and during the MRI.
God can do this!
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Tori’s vision therapist came with materials for finger painting today to check an item off of her bucket list! She seemed to like the … Continue reading Tori’s Bucket List: Finger Painting