We have been wanting to share how we have been using the Team Tori funds for quite a while as a way of being transparent, as well as to show our … Continue reading Financial Transparency and Blessings
We have been wanting to share how we have been using the Team Tori funds for quite a while as a way of being transparent, as well as to show our … Continue reading Financial Transparency and Blessings
We try to educate others about our everyday life as much as possible, especially when it comes to unique medical things that we ourselves knew nothing about six months ago. … Continue reading Life with a Feeding Tube
We’re on a roll with doing things on Tori’s bucket list! Today was the perfect day to go to Lake Tobias, a wildlife park about 40 minutes north of Harrisburg. … Continue reading Tori’s Bucket List: Lake Tobias
There are many pieces of equipment that help our Krabbe babies, and a “stander” is one of those things. Tori will be getting the EasyStand Zing MPS. The stander … Continue reading Stander Fitting!
Well, this one didn’t go as planned, but those are always the best memories anyway! (You can see her full list here: https://thebrackbills.com/toris-bucket-list/ )
Tori’s Grandma Amy and Aunt Kelly spent the evening with us so we decided to do another bucket list item: catch fireflies so Tori could look at them in a jar (and then release them, of course).
I didn’t have the joy of experiencing fireflies until I was 19, so I wanted her to see them at the young age of 1. 😄
Brennan and Grandma Amy caught a whole bunch of them and Aunt Kelly held the jar. I was holding Tori on the porch so my picture taking was limited (could only use phone, and it was getting dark…).


But the fireflies wouldn’t light up in the jar! We waited for quite a while and even put grass in there for them. They just crawled around the jar…

We all laughed because it was so funny that the fireflies were being so stubborn 😉 But we had fun anyway and can try again soon.
Tori is worn out from such an exciting day! Let’s hope she sleeps well tonight!

At 9:25am on Wednesday, July 30, 2014, Victoria Ruth Brackbill entered this world by c-section after 20 hours of labor. We became parents – her parents. She had a full … Continue reading Tori is ONE!
We have been continually amazed at the dreams that people are having about Tori and we pray that they are prophetic. It has been awhile since we posted the dreams … Continue reading Dreams of Healing, Part Three
When we posted about the bucket list of experiences we had developed for Tori, we never expected the response that we received! For us, it was merely a continuation of … Continue reading Tori’s Bucket List Update
When my grandfather passed away last month after a long battle with Alzheimer’s, I started thinking about Heaven much more than usual. We all rejoiced knowing that he was able … Continue reading Homesick
We had a fabulous day in Hershey today! We started with breakfast at The Circular at The Hotel Hershey and it was fantastic! We then took a tour of the … Continue reading Day in Hershey