We were introduced to RYFO about four years ago and it quickly became one of our favorite ministries ever. It all started with this video coming across my Facebook news … Continue reading RYFO: Serving the Voices
We were introduced to RYFO about four years ago and it quickly became one of our favorite ministries ever. It all started with this video coming across my Facebook news … Continue reading RYFO: Serving the Voices
One of our favorite things to do in Harrisburg is to ride on the Pride of the Susquehanna – a historic riverboat that offers cruises up the river, including dinner … Continue reading Tori’s Bucket List: Pride of the Susquehanna
As we thought about what to put on Tori’s Bucket List, we wanted to provide stimulating experiences for her, for as many of her senses as possible. Brennan and I … Continue reading Tori’s Bucket List: Butterfly House at the Hershey Gardens
We received confirmation tonight that we are going to Disney World in September thanks to the Quinn Madeleine Foundation! This was the biggest item on Tori’s Bucket List and we … Continue reading Bucket List Update
Time for an update! She had her one-year check-up on Friday and got shots as well. She did really well and her pediatrician is pleased with her health. We picked … Continue reading #ToriTuesday Update
We have been continually amazed at the dreams that people are having about Tori and we pray that they are prophetic. If you ever have a dream about Tori being … Continue reading Dreams of Healing, Part Four
Tori will have another MRI in twenty days, a follow-up to the two done in February…
…the two that confirmed that her brain was damaged beyond repair by a then undiagnosed (but suspected) disease.
I remember that day so clearly – February 6, 2015. 10:45am.
My mom and I took Tori to her neurologist to review the MRI images and discuss the results.
Brennan didn’t come because we didn’t realize just how significant that day would be in our lives – we thought it was going to be routine. Fixable.
Even to my untrained eyes, it was evident that something was severely wrong based on those images.
Brennan has still never seen the MRIs (not intentionally – just haven’t had a chance to have someone show them to us again). He says he doesn’t think he wants to see them.
Tori had another MRI done two weeks later in Pittsburgh by Dr. Escolar to ensure that her specific protocol was followed so that the disease could be fully seen, and we haven’t had a chance to see those images either – we were far too grieved during that first visit to even think about asking.
It has now been six months since the first MRI and next Friday will be six months post-diagnosis.
When we travel to Pittsburgh at the end of the month, Dr. Escolar will perform another MRI to see what progression the disease has made.
This time we will ask to see them.
Shortly after Tori was diagnosed I had a thought that has been my prayer until now: that the next MRI would show unexplainable improvement. That Dr. E would be astonished, unsure of what she saw.
That they would want to make sure it was Tori’s brain they had scanned.
We cling to hope but remain firmly rooted in reality, knowing that this could be God’s plan for her.
BUT…what if His plan is for her to be healed? For His power to be shown through her?
What if He has world-changing plans for our little girl?
Please pray with us for unexplainable improvement twenty days from now (August 27). Pray for a miracle.
We will hope until the end that God will heal her – we serve a God who works outside of time, so He is never late.
August 27th, 1:45pm. Please join us in prayer before and during the MRI.
God can do this!
We have been wanting to share how we have been using the Team Tori funds for quite a while as a way of being transparent, as well as to show our … Continue reading Financial Transparency and Blessings
We’re on a roll with doing things on Tori’s bucket list! Today was the perfect day to go to Lake Tobias, a wildlife park about 40 minutes north of Harrisburg. … Continue reading Tori’s Bucket List: Lake Tobias
There are many pieces of equipment that help our Krabbe babies, and a “stander” is one of those things. Tori will be getting the EasyStand Zing MPS. The stander … Continue reading Stander Fitting!