Tag: Krabbe

Holding on to Hope…

· 10 Comments ·

   
   
Tori will have another MRI in twenty days, a follow-up to the two done in February…

…the two that confirmed that her brain was damaged beyond repair by a then undiagnosed (but suspected) disease.

I remember that day so clearly – February 6, 2015. 10:45am.

My mom and I took Tori to her neurologist to review the MRI images and discuss the results. 

Brennan didn’t come because we didn’t realize just how significant that day would be in our lives – we thought it was going to be routine. Fixable.

Even to my untrained eyes, it was evident that something was severely wrong based on those images.

Brennan has still never seen the MRIs (not intentionally – just haven’t had a chance to have someone show them to us again). He says he doesn’t think he wants to see them.

Tori had another MRI done two weeks later in Pittsburgh by Dr. Escolar to ensure that her specific protocol was followed so that the disease could be fully seen, and we haven’t had a chance to see those images either – we were far too grieved during that first visit to even think about asking.

It has now been six months since the first MRI and next Friday will be six months post-diagnosis. 

When we travel to Pittsburgh at the end of the month, Dr. Escolar will perform another MRI to see what progression the disease has made.

This time we will ask to see them.

Shortly after Tori was diagnosed I had a thought that has been my prayer until now: that the next MRI would show unexplainable improvement. That Dr. E would be astonished, unsure of what she saw. 

That they would want to make sure it was Tori’s brain they had scanned.

We cling to hope but remain firmly rooted in reality, knowing that this could be God’s plan for her.

BUT…what if His plan is for her to be healed? For His power to be shown through her? 

What if He has world-changing plans for our little girl?

Please pray with us for unexplainable improvement twenty days from now (August 27). Pray for a miracle. 

We will hope until the end that God will heal her – we serve a God who works outside of time, so He is never late.

August 27th, 1:45pm. Please join us in prayer before and during the MRI. 

God can do this!

Tori’s Bucket List: Catching Fireflies

· 1 Comment ·

Well, this one didn’t go as planned, but those are always the best memories anyway! (You can see her full list here: https://thebrackbills.com/toris-bucket-list/ )

Tori’s Grandma Amy and Aunt Kelly spent the evening with us so we decided to do another bucket list item: catch fireflies so Tori could look at them in a jar (and then release them, of course).

I didn’t have the joy of experiencing fireflies until I was 19, so I wanted her to see them at the young age of 1. 😄

Brennan and Grandma Amy caught a whole bunch of them and Aunt Kelly held the jar. I was holding Tori on the porch so my picture taking was limited (could only use phone, and it was getting dark…).



But the fireflies wouldn’t light up in the jar! We waited for quite a while and even put grass in there for them. They just crawled around the jar…


We all laughed because it was so funny that the fireflies were being so stubborn 😉 But we had fun anyway and can try again soon.

Tori is worn out from such an exciting day! Let’s hope she sleeps well tonight!